Prayers for my son please
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04-20-2007, 06:52 PM
#93
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Thanks for all the replies and encouragement. We have made the decision to have Nick transferred to University Of Texas M.D. Anderson cancer center.
04-20-2007, 06:58 PM
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Our prayers are with you and yours. It is understandable how a life can be so fragile...
Around September, I was feeling fatigued all day, and not more than 7 months ago I was diagnosed with what is called a Viral Cardiomyopathy.
Adisease of unknown origin that attacks the heart muscle, weakening it severely and basically it came down to either it strengthens in time with medications, (mine was only pumping 15% of the 55-60% normal rating), I will need a defibrillator installed in my chest to shock my a$$ when I have an eurhythmia, or a HEART TRANSPLANT...which after the second Echo Cardiogram (end of November) it looked like the later was inevitable.
Swallowing that at 34 years old, having a 15 month old at home with a new family and an entire hospital knowing you as "tha young guy" and knowing I would possibly be put on the heart transplant list was grueling. Everyone asked how I kept such a calm, cool head about me. Wasn't easy. Assure him every day it will be ok and he will grow strength, but don't force it on him... he will remain strong.
At least there is definitely hope he can be treated, in this day and age it is almost second nature to fix issues leading to failures.
Follow what everyones thoughts are.. ask alot of questions and research the hell out of it. Like MsPatriyacht said... a pen and paper are usually your best ears. I have half a notebook filled with information from 5 different Cardiologists. no lie.
With our prayers combined, blessed is he and he will remain in delicate hands to restore him and heal all wounds.
We will all look forward to his recovery, and he will always continue in our prayers.
If he would ever need to speak with anyone, I would be happy to lend an ear and help him through it.
My cell # is 732.688.7229
SIncerely,
"tha young guy"
Around September, I was feeling fatigued all day, and not more than 7 months ago I was diagnosed with what is called a Viral Cardiomyopathy.
Adisease of unknown origin that attacks the heart muscle, weakening it severely and basically it came down to either it strengthens in time with medications, (mine was only pumping 15% of the 55-60% normal rating), I will need a defibrillator installed in my chest to shock my a$$ when I have an eurhythmia, or a HEART TRANSPLANT...which after the second Echo Cardiogram (end of November) it looked like the later was inevitable.
Swallowing that at 34 years old, having a 15 month old at home with a new family and an entire hospital knowing you as "tha young guy" and knowing I would possibly be put on the heart transplant list was grueling. Everyone asked how I kept such a calm, cool head about me. Wasn't easy. Assure him every day it will be ok and he will grow strength, but don't force it on him... he will remain strong.
At least there is definitely hope he can be treated, in this day and age it is almost second nature to fix issues leading to failures.
Follow what everyones thoughts are.. ask alot of questions and research the hell out of it. Like MsPatriyacht said... a pen and paper are usually your best ears. I have half a notebook filled with information from 5 different Cardiologists. no lie.
With our prayers combined, blessed is he and he will remain in delicate hands to restore him and heal all wounds.
We will all look forward to his recovery, and he will always continue in our prayers.
If he would ever need to speak with anyone, I would be happy to lend an ear and help him through it.
My cell # is 732.688.7229
SIncerely,
"tha young guy"
