Is Todd OK?
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12-03-2008, 09:41 PM
#13
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I hope all is going well with Todd, my youngest son (23) was diagnoised with AML 3 yrs ago and we have been in and out of remission all the way. We have just had day 100 after a BMT ( his oldest brother was a match ) and he is showing 100% donor cells. We will put Todd in our prays and hope ever thing is going well .
later
Dave Hughes
later
Dave Hughes
12-04-2008, 10:07 AM
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The latest from Todds Blog,
Good to hear from you Todd....
December 4, 2008
Right now we are scheduled to head back to Seattle on June 16, 2009. But we are going to play it by ear. They said if he seems to be feeling good and there are no concerns we will not need to come out and we can just have a phone conference. But if there are questions or concerns we can head back. We are planning on staying in touch with the Long Term Follow Up Department by phone to keep them updated.
They did not test for the BCR-ABL (the CML protein) this trip. They will check this again in June by blood. The last check (June 2008) showed zero Leukemia cells!!
Thanks for all of the prayers and support. This continues to be a journey for us but we are so thankful to have so many wonderful people who care about us. We will keep you updated as the taper begins. Please continue send us your prayers and good thoughts as we continue to battle!!
Love to all!
Good to hear from you Todd....
December 4, 2008
Right now we are scheduled to head back to Seattle on June 16, 2009. But we are going to play it by ear. They said if he seems to be feeling good and there are no concerns we will not need to come out and we can just have a phone conference. But if there are questions or concerns we can head back. We are planning on staying in touch with the Long Term Follow Up Department by phone to keep them updated.
They did not test for the BCR-ABL (the CML protein) this trip. They will check this again in June by blood. The last check (June 2008) showed zero Leukemia cells!!
Thanks for all of the prayers and support. This continues to be a journey for us but we are so thankful to have so many wonderful people who care about us. We will keep you updated as the taper begins. Please continue send us your prayers and good thoughts as we continue to battle!!
Love to all!
12-04-2008, 10:36 AM
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Dave
Glad to here that things are going good for your son!!
The few people that I have met that have had siblings as donors are doing very good!!
Things keep trucking along for me I keep trying to get over the graft vs host! They tell me sooner or later it will happen!
The side effects from the meds that I take to keep it under control are the pain right now it is much better to deal with this than the alternative!
Thanks
For all the support!!
Glad to here that things are going good for your son!!
The few people that I have met that have had siblings as donors are doing very good!!
Things keep trucking along for me I keep trying to get over the graft vs host! They tell me sooner or later it will happen!
The side effects from the meds that I take to keep it under control are the pain right now it is much better to deal with this than the alternative!
Thanks
For all the support!!
12-05-2008, 10:56 AM
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Yeah I guess you could say that!
I see Doug every day now he is actually working for us now.
Allan is doing well married over the summer and expecting a baby this summer!
Let me know we would love to get out!
I see Doug every day now he is actually working for us now.
Allan is doing well married over the summer and expecting a baby this summer!
Let me know we would love to get out!
12-06-2008, 10:22 AM
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No Allan sold his boat and I had to get rig of mine before I had the bone marrow transplant.
It was a god time though.
I only made it out on the river once this year and to Cumberland twice on friends boats.
I am currently mostly boatless except for a little old fishing boat.
It was a god time though.
I only made it out on the river once this year and to Cumberland twice on friends boats.
I am currently mostly boatless except for a little old fishing boat.
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